Read more in an article here.At 17 years old, I was officially diagnosed with Usher syndrome. I was devastated upon receiving my diagnosis, but I also felt a strange sense of relief. Even though I had just found out I would eventually go blind and potentially deaf, I still had time to do something about it, time to live my life as fully as I could during the years that I still had my daytime vision.
image from UsherSyndromeSociety.org