Living with Usher Syndrome

Shannon Reyenga explains a difficult decision in Huffington Post article titled, "Why I Didn’t Tell My Boyfriend I Was Going Blind Until I Absolutely Had To." She writes, "After I learned I had Usher syndrome, I thought I lost any chance of finding love. I struggled with the idea of finding someone willing to face this challenging diagnosis with me. I could hardly face it myself." Read her full story here.